Sunday, August 1, 2010

Game On



In the words of Wayne Campbell, "Game On!"

I feel like the past week has been a summation of everything Todd and I have gone through since 2004. We have faced more hurdles and challenges in just one week than we have over the course of six years.

Some of the not-so-high highlights:

  • Waiting over two hours at a pharmacy to get morphine lollipops for my husband so his pain level could subside for a bit
  • Reading Todd's text as he sat for 8 hours during his chemo treatment: "If there's a hell, this brown recliner would be it."
  • Watching Todd's face when the doctor told him: "You will be on chemo indefinitely - probably for the rest of your life."
  • Reviewing my notes from our follow-up visit with UPENN. Although the page was a bit tear stained and my writing a bit scribbley, I could still make out the phrase:  "At this point we have no other options..." 
  • Lugging 45 pounds of Todd's TPN (feeding tube nutrition which must be refrigerated) to a friend's house down the block during a power outage
  • Weighing Todd in at 119 pounds (-23 pounds since the June 28th surgery date) 

Despite it all, we've managed to hit some goals and high points as well:

Todd began his chemotherapy this past Tuesday which means that, finally, he is actively fighting this thing.  I bought him a new, totally awesome bike which he has been able to take out for a spin or two to get the body moving and the mind refreshed. And, in typical Gov style, Todd went on his first 2 mile jog yesterday. Pretty amazing.

For those  of you that don't really know our situation, I work in Manhattan and sometimes have to stay in the city during the week due to my two hour commute. On the nights I have to be in NYC, it is extremely difficult and painful to be away from Todd and our black lab, King. I try to pass the time much in the same way that Todd tries to pass his time while he is on chemo. I count the days, the hours, the minutes until I will get back to our home at the beach where the ocean helps carry some of the burden.

So, a few nights ago, I went into Strand Bookstore right near our apartment.  At the checkout line, a fridge magnet with a powerful quote by Winston Churchill caught my eye:
In my eagerness to get home and slap it on our fridge, I realized that I found our new mantra which we will repeat over and over in our heads until we have beaten this thing once and for all: "Never, never, never give up."

Todd's chemo schedule is the same as it has always been except the drugs are more intense and heavy hitting. He has 3 days of continuous chemo followed by an 11 day break. It's a beautiful morning  - the first of my one week vacation. We're off to watch the sunrise together at the beach with King.

Thank you again for all of your support and encouragement. We feel infinitely better knowing that we have you in our corner.

We'll be in touch again soon.

Love,
Amanda

3 comments:

  1. Please know that Churchill's quote will be our mantra too and your friends will never never never give up on being your cheerleaders and support and army for whatever lies ahead. We are here for you and Todd. Love you!

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  2. Both of you have such a strength of spirit that inspires us all. I recently experienced this full-on while we were on a work trip together. Despite all that you and Todd have been going through, Amanda remained the bright light of sunshine for the entire group, and not to mention the fact that she was absolutely hilarious... that is truly the spirit of seas it. I have many lessons to learn from you both.

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  3. Life is always a roller coaster, but no doubt you both have had more than your fair share. The way you are able to identify and appreciate the highs (even when they are "relative" highs, I know, such as starting chemo), is constantly inspiring and reminds me to do the same. We're sending HUGE hugs to you both, and will be embracing the new mantra wholeheartedly.

    xoxo - Sara Sutton Fell ^& family

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